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    Brittany Ireland requires in-home care - Staff photo by Ben McCanna | of | Share this photo

    Shari Griffin carries her daughter Brittney Ireland to bed for an afternoon nap. Ireland, 30, is severly disabled from a rare form of epilepsy.

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    Brittany Ireland requires in-home care - Staff photo by Ben McCanna | of | Share this photo

    Brittney holds hands with grandmother Robin Coffin. Ireland, who suffers from a rare and severe form of epilepsy, is nonverbal, confined to a wheelchair and cannot eat solid foods.

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    Brittany Ireland requires in-home care - Staff photo by Ben McCanna | of | Share this photo

    Griffin tears up while discussing the many difficulties she's faced from Maine's Department of Health and Human Services.

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    Brittany Ireland requires in-home care - Staff photo by Ben McCanna | of | Share this photo

    Brittney receives a mixture of BOOST and Carnation Instant Breakfast from grandmother Robin Coffin.

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    Brittany Ireland requires in-home care - Staff photo by Ben McCanna | of | Share this photo

    Griffin flips through stacks of paperwork from Maine's Department of Health and Human Services. Unnecessary bureaucracy and paperwork have imperiled her daughter's life, Griffin said.

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    Brittany Ireland requires in-home care - Staff photo by Ben McCanna | of | Share this photo

    Brittney watches an episode of her favorite show, "Sofia the First." She receives in-home care.

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    Brittany Ireland requires in-home care - Staff photo by Ben McCanna | of | Share this photo

    Griffin gently pats Brittney's head while tucking her in. Griffin says bureaucratic roadblocks and incessant paperwork from Maine's Department of Health and Human Services have threatened her daughter’s safety.

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