Shari Griffin carries her daughter Brittney Ireland to bed for an afternoon nap. Ireland, 30, is severly disabled from a rare form of epilepsy.

Brittney holds hands with grandmother Robin Coffin. Ireland, who suffers from a rare and severe form of epilepsy, is nonverbal, confined to a wheelchair and cannot eat solid foods.

Griffin tears up while discussing the many difficulties she's faced from Maine's Department of Health and Human Services.

Brittney receives a mixture of BOOST and Carnation Instant Breakfast from grandmother Robin Coffin.

Griffin flips through stacks of paperwork from Maine's Department of Health and Human Services. Unnecessary bureaucracy and paperwork have imperiled her daughter's life, Griffin said.

Brittney watches an episode of her favorite show, "Sofia the First." She receives in-home care.

Griffin gently pats Brittney's head while tucking her in. Griffin says bureaucratic roadblocks and incessant paperwork from Maine's Department of Health and Human Services have threatened her daughter’s safety.