Frustrated by the low federal investment in muscular dystrophy, my family and I annually join others seeking congressional support for parity.
My sons’ story struck a chord with Republican Sen. Susan Collins, who took a leadership role tirelessly promoting relevant legislation.
She was an original co-sponsor of the Muscular Dystrophy CARE Act of 2001 and subsequent reauthorizations.
Research funded by this law helped increase the median age of survival for the form of muscular dystrophy my sons have by 10 years. The increased survival in what was considered a pediatric condition means the Centers for Disease Control needs to update muscular dystrophy care guidelines for adults.
Many Americans agree the federal government does well funding biomedical research.
Acting on this fact and hoping to change outcomes for families, Sen. Collins is recognized as a champion within the muscular dystrophy community.
My family and I strongly support Sen. Collins for re-election.
Brian Denger
Biddeford
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